A Survey Investigating Medical Issues in the Autism Spectrum and Ehlers-Danlos Syndrome

Hi, everyone. My team and I are looking for adults aged 25 years or older (or the legal guardians of adults who fit those criteria) to take part in an online survey study investigating a range of symptoms in the Autism Spectrum, Ehlers-Danlos Syndrome, and the general population. We are interested in any adults aged 25 years or older from any country who are willing to take part. You don’t need to have an autism or Ehlers-Danlos diagnosis in order to participate, since we want to compare these issues across different groups of people.

This study is IRB-approved through the Greenville Health System (GHS) in South Carolina. Its purpose is to better understand a range of some of the medical conditions that may affect people with an Autism Spectrum Condition and/or Ehlers-Danlos Syndrome and how they may differ from the general population.

If you are an adult 25 years of age or older and would like to take part in this study, please follow the link below to read more and get started:

http://www.surveygizmo.com/s3/3420093/Expanding-Our-Understanding-of-Symptoms-Associated-with-Ehlers-Danlos-Syndromes

If you have any questions, please email me, Dr. Emily Casanova, at ecasanova@ghs.org.

There are minimal risks involved by taking part in this study and you will not be compensated for your time. However, you will be helping scientists better understand some of the medical issues that affect these subpopulations, which may ultimately lead to improved treatment interventions and better quality of life for those on the autism and Ehlers-Danlos spectrums and with related conditions.

Thank you.

Emily L. Casanova, PhD
Dept. Biomedical Sciences
University of South Carolina Greenville Medical School
Greenville Health System

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